Hello Spring!

Wow, time has sure slipped away from me!  I hope this finds you all doing well.  We have a very busy April planned.  In April we are going back to physical therapy 2x/ week.  Just to help with some balance issues as well as changes in textures under Westins feet.  This really can catch Westin off guard which causes him to fall.  I don't want this happening when we are outside so its important to get him as stable as possible!  We were doing speech therapy 1x/week for the past couple of months but as of last week that is currently on hold.  His speech therapist felt that his tongue tie is just tight enough to cause him to not be able to lift his tongue to the roof of his mouth. Which doesn't seem like a really big issue, but as he gets older it causes issues with teeth and jaw placement. So he is scheduled for surgery on April 16th.  I just hate the thought of this, because this could of been taken care of when he had his tonsils out.


We also go back to Minneapolis April 20 and 21st for a round of tests as well as SB clinic.  This time he will have some testing done on his bladder and kidneys that we haven't had done in over a year and half.  Last time we had a couple of these tests done we weren't able to complete them because they were simply to painful for Westin.  I pray that things go better this time and we will be able to distract him with the I pad.  These tests measure the size and thickness of the bladder as well as how much its able to hold and also what grade of reflux he has.  It also measures the pressure in the bladder.  All of these things are very important, because you need to have a healthy bladder and kidneys.  On the 21st we will meet with Westins team of Drs's and go over the test results as well as what our plan is for going forward.  We will get a new RX for braces for Westin.  It will be interesting to see what they suggest.  If they think SMO's will still be OK or if they will want to move him back to an AFO.  His local PT thinks that hes doing well with the SMOs and that we should be just fine continuing with those.

We also have the BEST news for Westins Urologist.  Back at the end of February Westin stayed with my mom for 5 days and she was able to potty train him!  This is almost unheard of with Spina Bifida kiddos.  This is such a HUGE accomplishment, words cant even describe how proud and happy we are for him!!!!  

Now if it would stay warm, so we can get outside, play in the mud, and find bugs!